Oncology experts believe unlocking the cure for kidney cancer leads to breakthrough treatments for other cancers.
vision
We are committed to curing kidney cancer and other cancers now.
Mission
We are the voice of kidney cancer advocacy in Washington, D.C. and the U.S.
strategy
We seek research funding for breakthroughs and early detection.
opportunities
We welcome you and your advocacy. With relentless devotion to our vision and our shared resources, we will achieve lasting legacies.
Free Book!
Whether you're a newly diagnosed patient or a friend or relative of someone suffering from kidney cancer, this book can help. Offering both doctor and patient perspectives, 100 Questions & Answers About Kidney Cancer, Second Edition provides authoritative and practical answers to the most commonly asked questions by patients and their loved ones. What is kidney cancer? What causes kidney cancer? How is kidney cancer treated?
Along with the answers to these and other questions, this book provides information on the different types of kidney cancer, signs and symptoms, treatment options, and more. Written by experts in the field 100 Questions & Answers About Kidney Cancer, Second Edition is an invaluable resource for anyone coping with the physical and emotional uncertainty of this disease.
(From Amazon.com)
“We have two options, medically and emotionally: give up or fight like hell.”
WHAT WE'RE DOING
HOW WE'RE DOING IT
Congressional meetings, (in district and in D.C.)
Advocacy days (fly-in) - Capitol Hill
Congressional briefings
Congressional letters
Agency meetings (FDA, NIH/NCI, CDC)
Consortium involvement and engagement (AUA, OVAC, DHRC, AACR, ASCO, SBUR, others)
Convene Stakeholder gatherings - “Connect, Network and Advocate” (attendees – patients, caregivers, physicians, hospitals, industry/pharma, life sciences, others)
Coalition building – IKCC, KCCure, Kure It, OVAC, VHL, JNF, DHRC – Harnessing and leveraging ourresources to have the strongest voice
State leadership activities – Identify, train, activate state ‘grass top’ leaders and advocates.
Stakeholder Registry – database development of grassroots advocates
Public relations/media outreach
Targeted issue advertising
Engaging stakeholders in Washington
Mobilizing the community
Leveraging resources to achieve the vision of a cure
Increased research funding at the NIH/NCI
Increased research funding via the CDMRP
CDC funding for kidney cancer awareness and future screening funding
Congressional information resource
